Ouch
Went to the dentist again yesterday one of my teeth that has had root canal was broken at the root. I had that confirmed with an Endodontist some time ago, just bee putting off having it out.
Yesterday was the day to have it removed, it had develop an infection.
It took over an hour to get it out!
Having a tooth pulled it s bit like being in labour, you have no idea how painful it is.
You lay there questioning the health care person
You lay there screaming in your head “get this thing out of me”
You lay there terrified thinking “it’s never coming out”
You lay there wondering if your going to be rushed to surgery to have the think ripped out.
The difference is after having a tooth rummier the pain gets worse, with labour you hold your baby.
About that $80,000
A few people had me questioning if the dentist said $80,000 or $18,000 I asked and it’s confirmed it’s $80,000 for me to have a perfect mouth lol
I don’t need veneers….and would like to find a dentist that isn’t into perfection just comfortable will suit me.
I’ll have to have a trip to Brisbane to have another root canal $1,800 or have it pulled and no-way I’m having it out it has a little hook on the end of it can you imagine it would be surgery for sure.
Sunday, January 31, 2010
Monday, January 25, 2010
Just wanted to say
I had a God day today, I feel like I'm finally moving towards peace in my heart and mind.
Aden's first day at Kindy
Aden had the most wonderful 45mins, of first day at Kindy. I will update my blog tomorrow (I hope) because I have driven for7+hours today/tonight in pouring rain, by myself and I’m totally exhausted. Will chill out in fairyland garden (Facebook) for a bit before heading off to bed, it's only 9:30pm I'm so tired
Friday, January 22, 2010
Calling all gardeners
Our poor Pineapple plant doesn't matter where in the yard we put it, it wasn't happy. the card said full sun, yeah right it didn't like that at all. we went for filtered sun it seemed to be doing better, slowly she dropped and now after weeks of trying to save her, she snapped.
here is my basil, can anyone tell me why it has a long stork. It’s going to become top heavy and droop over
These are the sad Tomato plants, oh dear the first lot died they new shoots shot up from nowhere, but the ladybugs are eating them fast. I'm trying to find a companion plant herb... to plant with them, a bit like Matthew's effort with my Aloe Vera lol
more very sad for them
see these two strawberry plants? they are all that grew from a whole packet of seeds. I tell myself it's ok, cause I'm wanting to buy heritage seeds so I can harvest my own seeds. not like the plants today, that you cant harvest from sigh
help me, help me someone please. ;-)
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Something else Matthew grew in with my Tyme that is kinda living lol
here is my basil, can anyone tell me why it has a long stork. It’s going to become top heavy and droop over 
These are the sad Tomato plants, oh dear the first lot died they new shoots shot up from nowhere, but the ladybugs are eating them fast. I'm trying to find a companion plant herb... to plant with them, a bit like Matthew's effort with my Aloe Vera lol
more very sad for them
see these two strawberry plants? they are all that grew from a whole packet of seeds. I tell myself it's ok, cause I'm wanting to buy heritage seeds so I can harvest my own seeds. not like the plants today, that you cant harvest from sigh
help me, help me someone please. ;-)
~~~~~~~~
My Grandfather was a gardener, I’m not but I want to learn. This year I’m going to sucseed, I want to grow organic vegies how hard van it be? People have been growing there own food for millions of years.
So I’m a bit naïve, I thought I could take the seeds from a tomato and grow them ha! And what about carrots? I discovered that you cant grow the seeds from them.
Oh boy so I had to buy the seeds, still I thought I’d let the carrots seed and save money on buying more. This vegie gardening would save us $$$ it would be worth the bit of effort for what we would get back. Fresh vegies no chemicals…
I brought magazinesthat I had planed to take photo’s of for this blog, stay tuned and seeds lol
Had planned that Craig would build me a huge garden, I’m not into working up a sweat in the heat. I was going plant seeds water and hope never to see weeds.
Then Craig hurt his arm at work, I found some buckets of the kids, had Craig drill holes in the bottom, went down and brought some vegie potting mix, planted the seeds and well nothing grew. Ha?
My reading has continued and continued to confuse me, that isn’t hard either after all I could barely read when I left school and still cant spell. So you know…
I can however spell succeed and that is what I’m determined to do, I’m going to succeed and I’m going to grow vegies. Doesn’t matter that it might take me my entire life I’m going to get it. I haven’t inherited my Grandfathers Green thumb.
I kill every plant I water.
So I’m a bit naïve, I thought I could take the seeds from a tomato and grow them ha! And what about carrots? I discovered that you cant grow the seeds from them.
Oh boy so I had to buy the seeds, still I thought I’d let the carrots seed and save money on buying more. This vegie gardening would save us $$$ it would be worth the bit of effort for what we would get back. Fresh vegies no chemicals…
I brought magazines
Had planned that Craig would build me a huge garden, I’m not into working up a sweat in the heat. I was going plant seeds water and hope never to see weeds.
Then Craig hurt his arm at work, I found some buckets of the kids, had Craig drill holes in the bottom, went down and brought some vegie potting mix, planted the seeds and well nothing grew. Ha?
My reading has continued and continued to confuse me, that isn’t hard either after all I could barely read when I left school and still cant spell. So you know…
I can however spell succeed and that is what I’m determined to do, I’m going to succeed and I’m going to grow vegies. Doesn’t matter that it might take me my entire life I’m going to get it. I haven’t inherited my Grandfathers Green thumb.
I kill every plant I water.
~~~~~~~~~~~~~~~~~~
Still I have managed to grow a few things
Matthew took off with the seeds and planted some in with my Aloe Vera doesn’t this Aloe look great? it didn’t always, it was dieing but I’ve stopped over watering and it’s come back.
We are thinking the seeds that have now sprouted, are pumpkins, did we get that right? What is wrong with them, they don’t look good . some are brown and yellow and what's with the white stuff. we wont be eating these as they are in rergular potting mix not vegie mix
We are thinking the seeds that have now sprouted, are pumpkins, did we get that right? What is wrong with them, they don’t look good . some are brown and yellow and what's with the white stuff. we wont be eating these as they are in rergular potting mix not vegie mix
Something else Matthew grew in with my Tyme that is kinda living lolwhat are these anyone knwo I have NO idea, I brought a lot of seeds that day. that was the easy part
here is a plant not a veg lol I have no idea it's name I seen it liked it and paid 50c for it. it was mroe than half dead when I brought it. dont knwo why I thought I could save it but it's growing wild lol please dont tell me it's a weed hahaha I love it
another half dead 50c plant, is grow well. why cant my vegies grow this well??
here is a plant not a veg lol I have no idea it's name I seen it liked it and paid 50c for it. it was mroe than half dead when I brought it. dont knwo why I thought I could save it but it's growing wild lol please dont tell me it's a weed hahaha I love itanother half dead 50c plant, is grow well. why cant my vegies grow this well??
the night before the sleep deprived EEG, Aden at 10:30 he was soo tired.
and after the EEG, he was so good only complained a few times when she tugged his hair. it would have hurt, they use a paddle pop stick to separate the hair, where they then put the glue to hold the wires in place. Aden only went to grab them 4times as soon as we told him no he would say "k, k, k?" which is how he asks if it all going to be ok. he does this also when he is scared. once we tell him "it's ok Aden" he is fine, he trust us and knows we wouldn’t' lie ;-)
after we went shopping, brought Aden a new toy cant remember now what that was.. anyway
See this face! see that chocolate? I dont remember paying for a chocolate for Aden. Taking Aden ot of the pram I see a little boy with chocolate all over his face.
in the car i turned with camera lol and asked "Aden where did you get the chocolate?"
then he needed a drink poor child must have been thirsty
we should have the results in 2 weeks
and after the EEG, he was so good only complained a few times when she tugged his hair. it would have hurt, they use a paddle pop stick to separate the hair, where they then put the glue to hold the wires in place. Aden only went to grab them 4times as soon as we told him no he would say "k, k, k?" which is how he asks if it all going to be ok. he does this also when he is scared. once we tell him "it's ok Aden" he is fine, he trust us and knows we wouldn’t' lie ;-)
after we went shopping, brought Aden a new toy cant remember now what that was.. anyway
See this face! see that chocolate? I dont remember paying for a chocolate for Aden. Taking Aden ot of the pram I see a little boy with chocolate all over his face.
in the car i turned with camera lol and asked "Aden where did you get the chocolate?"
then he needed a drink poor child must have been thirsty
we should have the results in 2 weeks
Aden's starts Kindy on Monday
I’m not ready. have to make up sign cards for them.
They have found a mum that is going to be his Aide, yeah I hope she is nice.
They have told her that “mum is staying” hope she is not too freaked out thinking I’m going to be looking over her shoulder.
I cant bring myself to leave him there, last year I left him with his Early intervention teacher, while I seen the chiropractor and had a massage, I was in agony and had to.
When I returned Aden had fallen asleep, I was told he didn’t cry but they knew he was traumatised.
These lady’s work with children with intellectual disability’s and know the little clues children give. Unlike the kindy, they wont know just how upset Aden would be.
The total time I left him was around 3hours.
Two weeks later I took Aden to Rhyme time at the library, Aden loves to crawl around and play with the kids, and enjoys the craft activities I’m not a craft mummy so it’s great for Aden who would have thought that day of leaving him for 3hours would still be upsetting him. Clearly not me.
I put Aden down next to me, he jumped up crying and clinging onto me. He wouldn’t’ move off my lap, nor would he sit on the chair for craft, with me cuddling him and telling him I’m staying…
He’s older now but still has never been away from either me or his Dad.
The inclusion support lady’s are lovely, she told me that it might take all year before I could leave him and go up town for a coffee not that I drink coffee lol
It’s lovely to know that these lady’s completely understand how upsetting it is for Aden and they are there to help make his “learning experience positive..”
Now if only the Kindy centre would stop saying to me, how I need time to myself and how much they want “me” to feel comfortable enough to leave him.
Ugh they don’t’ understand it’s nothing to do with how I’m feeling, it’s Aden when he is ready I will leave him. I will know and will be more than happy to. Am equally happy if that take 3 weeks or 5 years.
________________________________________
To do list
work out what I can send him to eat??
find Matt's Kindy sheets {I have found one}
inspire myself to go. {this is the last thing I want to do with my days, to sit at the Kindy and chase Aden around} I feel terrible for thinking it even worse for typing it, but it’s how I feel. I’m still having root canal therapy on my teeth they are hurting so much, it’s driving me crazy
Print out and laminate sigh cards {I have 3days I better get onto it!}
Concerns
At this point, I’m worried about hwo the other children will respond to Aden. When he is with children he pulls the girls hair and wrestles the boys.
When I took him in for a look around the Kindy room he was SO loud, and of cause the children couldn’t’ understand him and wondered why a baby was in their room.
I’m not even going to think anymore eon my concerns and just try and think about the lovely time Aden WILL have. Chasing the girls and thumping the boys lol
For the moment Aden will be attending one day a week, am hoping for two a Monday and Wednesday. Se how I hold up lol
_____________________________
Tayla starts her first job tomorrow morning which is really today as I’m up past midnight again
She’s so excited and I’m wondering when did my baby girl grow up?
Year 11 is one of the hardest years, Dad and I aren’t keen for her to do to many hours.
They have found a mum that is going to be his Aide, yeah I hope she is nice.
They have told her that “mum is staying” hope she is not too freaked out thinking I’m going to be looking over her shoulder.
I cant bring myself to leave him there, last year I left him with his Early intervention teacher, while I seen the chiropractor and had a massage, I was in agony and had to.
When I returned Aden had fallen asleep, I was told he didn’t cry but they knew he was traumatised.
These lady’s work with children with intellectual disability’s and know the little clues children give. Unlike the kindy, they wont know just how upset Aden would be.
The total time I left him was around 3hours.
Two weeks later I took Aden to Rhyme time at the library, Aden loves to crawl around and play with the kids, and enjoys the craft activities
I put Aden down next to me, he jumped up crying and clinging onto me. He wouldn’t’ move off my lap, nor would he sit on the chair for craft, with me cuddling him and telling him I’m staying…
He’s older now but still has never been away from either me or his Dad.
The inclusion support lady’s are lovely, she told me that it might take all year before I could leave him and go up town for a coffee
It’s lovely to know that these lady’s completely understand how upsetting it is for Aden and they are there to help make his “learning experience positive..”
Now if only the Kindy centre would stop saying to me, how I need time to myself and how much they want “me” to feel comfortable enough to leave him.
Ugh they don’t’ understand it’s nothing to do with how I’m feeling, it’s Aden when he is ready I will leave him. I will know and will be more than happy to. Am equally happy if that take 3 weeks or 5 years.
________________________________________
To do list
work out what I can send him to eat??
find Matt's Kindy sheets {I have found one}
inspire myself to go. {this is the last thing I want to do with my days, to sit at the Kindy and chase Aden around}
Print out and laminate sigh cards {I have 3days I better get onto it!}
Concerns
At this point, I’m worried about hwo the other children will respond to Aden. When he is with children he pulls the girls hair and wrestles the boys.
When I took him in for a look around the Kindy room he was SO loud, and of cause the children couldn’t’ understand him and wondered why a baby was in their room.
I’m not even going to think anymore eon my concerns and just try and think about the lovely time Aden WILL have. Chasing the girls and thumping the boys lol
For the moment Aden will be attending one day a week, am hoping for two a Monday and Wednesday. Se how I hold up lol
_____________________________
Tayla starts her first job tomorrow morning
She’s so excited and I’m wondering when did my baby girl grow up?
Year 11 is one of the hardest years, Dad and I aren’t keen for her to do to many hours.
Tuesday, January 19, 2010
Aden had his EEG today
Thanks for all the prayers and well wishes... Aden had his Sleep deprived EEG today. I managed with Tay’s help to keep him up till 11 pm last night woke him about 6:45am.
They said to put him to sleep 2hours after his regular bedtime and wake him 2hours earlier. The Pead said keep him up to midnight and give him a lot less sleep we did our best.
He was really good, having his cap on, and while she hooked him up with wires. Only complaining when his hair was pulled, he put his hand up about 4 times total, to take it off. Once we told him no he stopped.
He didn’t fall asleep that didn’t matter though, he watched a DVD and then had the flickering lights.
She said they send them to Brisbane, results would be back between 2 to 3 weeks, possibly 4weeks. The video wasn’t working sigh, which is a big deal. She did her best to record the time every time he moved.
When Aden had his first EEG, there was a spike of activity but the video showed someone entered the room. Without that video they would have considered a seizure.
Will update once we have an answer, though that answer wont necessarily tell us the whole truth IYKWIM?
she didn't give any indication that anything showed, ugh she was tight lipped
They said to put him to sleep 2hours after his regular bedtime and wake him 2hours earlier. The Pead said keep him up to midnight and give him a lot less sleep we did our best.
He was really good, having his cap on, and while she hooked him up with wires. Only complaining when his hair was pulled, he put his hand up about 4 times total, to take it off. Once we told him no he stopped.
He didn’t fall asleep that didn’t matter though, he watched a DVD and then had the flickering lights.
She said they send them to Brisbane, results would be back between 2 to 3 weeks, possibly 4weeks. The video wasn’t working sigh, which is a big deal. She did her best to record the time every time he moved.
When Aden had his first EEG, there was a spike of activity but the video showed someone entered the room. Without that video they would have considered a seizure.
Will update once we have an answer, though that answer wont necessarily tell us the whole truth IYKWIM?
she didn't give any indication that anything showed, ugh she was tight lipped
Monday, January 11, 2010
Happy Birthday Zhenya
I'm guessing it's the 10th where you are little boy? Making it your Birthday today, your time. I hope you have a wonderful day and are loved by one of your carers, how could they not scoop you up? You are an adorable boy and anyone that catches your beautiful eyes will fall in love with you. God made them just the way they are, knowing that just the right Mummy and Daddy would fall in love with you the moment they see you.
Have a lovely Day I wish we could send you something, maybe we could send something to your orphanage for you and all your friends we will have to look into it.
I wish you knew that you have many people praying for you, we are all praying that you have the chance to grow up knowing you were loved by so many.
Sweet boy we love you, have a great day.
Have a lovely Day I wish we could send you something, maybe we could send something to your orphanage for you and all your friends we will have to look into it.
I wish you knew that you have many people praying for you, we are all praying that you have the chance to grow up knowing you were loved by so many.
Sweet boy we love you, have a great day.
Sunday, January 10, 2010
Zhenya's Birthday today
I wish I could type "Happy Birthday Zhenya"
You are 3years old today the 10th January. Your not my little boy and never will be though you will always hold a place in my heart and you will never know that we prayed for you, cried for you and our family talked and remembered your birthday to day.
I hope someone remember your birthday picks you up and gives you the longest cuddle you have ever had. Sweet boy it’s to painful to think about how your day might go. We love you and wish and pray someone somewhere in this world will love you enough, to go get you.
Looking at your sweet face into your eyes, while I type, kills me.
I hate that your name is in RED
I just want to scratch it out. I wish we could stop time, that you didn’t have to have birthdays
I would love to tell you that someone loves you enough to bring you home. I’d love to know that a mummy and daddy are sitting cuddling you tight, this time next year and that you wont ever see the insides of that very real institution. I cant stand to think that far ahead but I do, it very well might be your home this time next year if someone doesn’t step forward.
I’m praying sweet boy love you forever.
I know in my heart, I haven’t done enough and for that I’m sorry
You are 3years old today the 10th January. Your not my little boy and never will be though you will always hold a place in my heart and you will never know that we prayed for you, cried for you and our family talked and remembered your birthday to day.
I hope someone remember your birthday picks you up and gives you the longest cuddle you have ever had. Sweet boy it’s to painful to think about how your day might go. We love you and wish and pray someone somewhere in this world will love you enough, to go get you.
Looking at your sweet face into your eyes, while I type, kills me.
I hate that your name is in RED
I just want to scratch it out. I wish we could stop time, that you didn’t have to have birthdays
I would love to tell you that someone loves you enough to bring you home. I’d love to know that a mummy and daddy are sitting cuddling you tight, this time next year and that you wont ever see the insides of that very real institution. I cant stand to think that far ahead but I do, it very well might be your home this time next year if someone doesn’t step forward.
I’m praying sweet boy love you forever.
I know in my heart, I haven’t done enough and for that I’m sorry
Friday, January 8, 2010
Update on Aden
Pead rang back she is booking Aden in for a Sleep deprived EEG, she said it would be better to have a over night one (cant remember the name of it sorry) but we will have to go to Brisbane for that, so this for now and more than likely she will still send us to Brisbane.
She said they way Aden tosses and turns doesn’t sound like fitting through the night, but the only way to know is for the over night study, so we will be having this at some point.
Also she said that usually they don’t do tests for a one off, and even if something shows up in this first sleep deprived EEG, doesn’t mean medication straight away as kids can have a few and then nothing ever again. Though it depends on what they find….
Hopefully we will have the date for that on Monday, it’s Friday here now.
After I hung up the phone the post arrived, the booking for the regular EEG that the hospital organised is here. He was booked in for an Electroncephalograph (EEG) and hour test on the 18th Jan 10 days away. I hope he Pead can get him in quicker that this.
He’s been a bugger today, throwing this screaming crying, fighting with everyone. Picked up the DVD player and through it across the room, grr.
I forgot to give him his thyroid medication, till lunch time. I’ve done that three times now and he is the same. He has settled down now, ok no just a bit he is screaming again.
Poor kid, he must feel miserable.
Better run lol
She said they way Aden tosses and turns doesn’t sound like fitting through the night, but the only way to know is for the over night study, so we will be having this at some point.
Also she said that usually they don’t do tests for a one off, and even if something shows up in this first sleep deprived EEG, doesn’t mean medication straight away as kids can have a few and then nothing ever again. Though it depends on what they find….
Hopefully we will have the date for that on Monday, it’s Friday here now.
After I hung up the phone the post arrived, the booking for the regular EEG that the hospital organised is here. He was booked in for an Electroncephalograph (EEG) and hour test on the 18th Jan 10 days away. I hope he Pead can get him in quicker that this.
He’s been a bugger today, throwing this screaming crying, fighting with everyone. Picked up the DVD player and through it across the room, grr.
I forgot to give him his thyroid medication, till lunch time. I’ve done that three times now and he is the same. He has settled down now, ok no just a bit he is screaming again.
Poor kid, he must feel miserable.
Better run lol
Thursday, January 7, 2010
seizure?? update
we are wondering now if the seizure might have been brought on by pain. Aden has had a tummy bug, he's was screaming in pain. I got it today the cramping was so bad it felt like second stage labour. never have i ever had tummy pain like this from a bug. anyway a friend on DSDU forum, her brother had seizures brought on by pain. they are called vasovagal episodes think i have that right.
when Aden first woke up he was frowning like he was in pain so this might be it. i'm hoping so.
he was screaming at 3am when he woke with pain. God let this be it. Please
when Aden first woke up he was frowning like he was in pain so this might be it. i'm hoping so.
he was screaming at 3am when he woke with pain. God let this be it. Please
Aden had a Seizure last night
he is fine now. this isn't ment to happen.
At around 10:30pm luck Tay and I were up watching a movie, Aden had fallen asleep on the lounge earlier. It all happened quickly.
At first I thought he was having a bad dream, he was making a few sounds, when I looked over he had a frown {something I never seen on his sweet little face} then it seemed like he was aspirating, I went straight over to him. Aden will occasionally reflux in his sleep. As I walk over I notice he is stiff, one hand has curled and the other is stretched out. I tried to wake him. Only he wouldn’t’ wake and now had stopped breathing.
Tay dials 000 (911..) as I’m leaning in thinking I’m going to have to give him CPR, he seems like his is breathing again, but he isn’t waking and his mouth is quivering or something and his tongue was curling looking different, to hard to explain and everything is still a blur.
He was already in the recovery position and good thing to cause I wouldn’t have thought to do that. I pulled his dummy out thinking that would help him to breath easier, the dummy kinda popped out, his teeth weren’t clenched tight on the dummy but they were fix and I had to pull it hard to get it out. Soon as I did I wish I hadn’t of, thinking he might now bite his lip. He didn’t’ thank God.
We stayed in over night the Doctor rang a specialist this morning for a second opinion on sending us home. He said he is sending Aden for an EEG, even though the specialist said he wouldn’t’ as it’s the first time. The hospital in the city should call us within the week.
Took a while for Aden to wake up after I cant believe how he went from that to sound asleep.
All I could think was “No” no, no, no, this cant be happening. Anyway he is fine now up running around and hopefully this is a once off and never happens again.
It’s horrible scary and shit like this isn’t meant to happen to our beautiful kids.
I don't believe in miracles and never bother to pray for them, I pretty much figure it’s random luck of the draw. Funny how when in a situation like this, you find yourself believing like a child. I held onto his little head the whole 50minute Ambulance ride to the hospital, praying for God to work a miracle.
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When Aden was around 8mths he had an EEG, after we thought he was having Seizures. Turned out it was the side effects from motilium a drug I was using to help increase my milk supply. It was causing spams and cramping in Aden’s body.
Aden was to start taking this drug himself to help his digestion which is what it is usually prescribed for.
At around 10:30pm luck Tay and I were up watching a movie, Aden had fallen asleep on the lounge earlier. It all happened quickly.
At first I thought he was having a bad dream, he was making a few sounds, when I looked over he had a frown {something I never seen on his sweet little face} then it seemed like he was aspirating, I went straight over to him. Aden will occasionally reflux in his sleep. As I walk over I notice he is stiff, one hand has curled and the other is stretched out. I tried to wake him. Only he wouldn’t’ wake and now had stopped breathing.
Tay dials 000 (911..) as I’m leaning in thinking I’m going to have to give him CPR, he seems like his is breathing again, but he isn’t waking and his mouth is quivering or something and his tongue was curling looking different, to hard to explain and everything is still a blur.
He was already in the recovery position and good thing to cause I wouldn’t have thought to do that. I pulled his dummy out thinking that would help him to breath easier, the dummy kinda popped out, his teeth weren’t clenched tight on the dummy but they were fix and I had to pull it hard to get it out. Soon as I did I wish I hadn’t of, thinking he might now bite his lip. He didn’t’ thank God.
We stayed in over night the Doctor rang a specialist this morning for a second opinion on sending us home. He said he is sending Aden for an EEG, even though the specialist said he wouldn’t’ as it’s the first time. The hospital in the city should call us within the week.
Took a while for Aden to wake up after I cant believe how he went from that to sound asleep.
All I could think was “No” no, no, no, this cant be happening. Anyway he is fine now up running around and hopefully this is a once off and never happens again.
It’s horrible scary and shit like this isn’t meant to happen to our beautiful kids.
I don't believe in miracles and never bother to pray for them, I pretty much figure it’s random luck of the draw. Funny how when in a situation like this, you find yourself believing like a child. I held onto his little head the whole 50minute Ambulance ride to the hospital, praying for God to work a miracle.
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When Aden was around 8mths he had an EEG, after we thought he was having Seizures. Turned out it was the side effects from motilium a drug I was using to help increase my milk supply. It was causing spams and cramping in Aden’s body.
Aden was to start taking this drug himself to help his digestion which is what it is usually prescribed for.
Tuesday, January 5, 2010
Happy Birthday Aden
Aden’s had a wonderful day. I cant believe my baby is 4! Where did the time go? And we had our wish come true Aden walked before his 4th birthday. We were hoping for before age 3, but desperately hoped he would be walking before 4 and he did yeah!
I’ll post photo’s on the book later tonight if I cant get them to upload. Till then here is one from last night. Daddy had to work today so we gave him his present last night.
I’ll post photo’s on the book later tonight if I cant get them to upload. Till then here is one from last night. Daddy had to work today so we gave him his present last night.
Saturday, December 26, 2009
Here we go again
All pain is back with vengeance today! I’m half way through two lots of strong antibiotics, as well as antiinflammatories and taken my pain killers today. Still I sit here with all my teeth on my right side feeling like they are going to explode with pressure and heat. My friggen neck is aching my temple is about to explode. What the heck! Why is it back today????????????
Dentist opens Tuesday and they cant figure out which tooth it is, I don’t want to pull any while they don’t know. But I’d rather start pulling them now then to stay like this. Knowing my luck I’ll get a dry socket if I pull one and be really stuffed.
:-(
Dentist opens Tuesday and they cant figure out which tooth it is, I don’t want to pull any while they don’t know. But I’d rather start pulling them now then to stay like this. Knowing my luck I’ll get a dry socket if I pull one and be really stuffed.
:-(
Friday, December 25, 2009
Christmas Day
We've had a lovely Christmas day.
had a wonderful chat to my sister Julie for her borthday today. kids are finishing off the day in the pool, it's so hot here today.
Santa piñata thanks Uncle Denis and Aunty Sarah
home made with love are the best!
Scooby hide and seek is awesome 
had a wonderful chat to my sister Julie for her borthday today. kids are finishing off the day in the pool, it's so hot here today.
Santa piñata thanks Uncle Denis and Aunty Sarah
home made with love are the best!
Scooby hide and seek is awesome 
Christmas Eve
We have had a wonderful day, last night I continued to improve. was able to space out my pain killers, today only needing them twice Last night I stayed up backing cookies, after tossing in the bin the first 2 batches, Tay reminded me I brought packet gingerbread hehe my memory hasn’t been working well.
Finally I had cookies for the kids to decorate.
My dear sister who lives directly over the back fence, sent over snowman and Christmas tree cakes there were so cute, I sent over to her place, cookies and choc balls. The kids wanted to eat them up, as soon as I passed one to Matthew, Aden through himself off the chair and onto the floor. He doesn’t like to be second lol
No sooner did he have it in his hands it went straight into his mouth.
This year is the first year in over 20 years Craig just simply cant remember any further back for exact dates that Craig, has had Christmas with his Dad. Makes me teary to think it’s been that long since they have shared this special day. We see Mick quite often, he sleeps here every few weeks between jobs, it’s not like we don’t see him, but isn’t really nice and Craig is really looking forward to cooking a feast for his Dad.
I’ve been excited for him as well. Then today I had a little moment of “I wish my Dad could have been here”. My father committed suicide when I was 8yrs old, I don’t think of him often, was a little surprise when I felt I missed him, or more that I feel I am missing out, because he isn’t around.
Then tonight Matthew asked me if I had a photo of my Dad so he could see his “red hair” Matthew has known for a long time that he has the same colour hair as his Grandad. Cute! I’ll have to pull out an album.
I’ve been excited for him as well. Then today I had a little moment of “I wish my Dad could have been here”. My father committed suicide when I was 8yrs old, I don’t think of him often, was a little surprise when I felt I missed him, or more that I feel I am missing out, because he isn’t around.
Then tonight Matthew asked me if I had a photo of my Dad so he could see his “red hair” Matthew has known for a long time that he has the same colour hair as his Grandad. Cute! I’ll have to pull out an album.
The Gingerbread house.
Tay had to have a Gbhouse, has always wanted one, this month started out ok, lol so we brought one.
Tay started the process of assembling the houseit was a big job and didn’t line up, never again lol
Tay had to have a Gbhouse, has always wanted one, this month started out ok, lol so we brought one.
Tay started the process of assembling the house
I was called on and reluctantly stood in to help.The kids finished it off really well.
Tonight Matthew was so excited he had to write Santa a letter.
“Dear Santa I’m glad that you gave everyone presents
From Matt”
then Matt had to cut the letter when it wouldn't fold perfectly hehe 
Santa's been
Our most precious gift, is Zhenya and we will continue to pray that one day he to will know the love and security of a family, that he to will one day Celebrate Jesus birthday.
Please dear God bring a family to Zhenya so he will know love.
Wednesday, December 23, 2009
Thank you for the uplifting messages,
my head space is much better. I’m still in so much pain and over did the antiinflammatory’s over the past few days.
I’m hoping to head back to the dentist tomorrow yep the dreaded 6hours drive for the 3rd time in a week I’ve had root canal on one tooth, yet it’s still killing me. Another tooth had a tiny whole and I’m being assured that it couldn’t’ be hurting, yet it feels like it’s going to explode through my temple the pain is un bare able. I’m waiting to take my next lot of pain killers before bed. No way I could sleep. It’s hot and burning.
My anxiety wasn’t just over a tooth ache, was maid worse by it though. I cant believe how quickly my mind was in peace, I’m ever so grateful. Now if only money could fall from the sky……..
I’m convinced I’m having some type of chemical reaction to the fillings. It’s the only answer and I had it once before. Now off to take those pills I’m taking them early again cause it’s just too much not to.
I’m hoping to head back to the dentist tomorrow
My anxiety wasn’t just over a tooth ache, was maid worse by it though. I cant believe how quickly my mind was in peace, I’m ever so grateful. Now if only money could fall from the sky……..
I’m convinced I’m having some type of chemical reaction to the fillings. It’s the only answer and I had it once before. Now off to take those pills I’m taking them early again cause it’s just too much not to.
Monday, December 21, 2009
ever feel like you want people to pray for you
no matter how I right it how many times I try it sounds silly too hard to embarrassing I really need a calm heart anxiety at this level is horrible. I keep wanting to take deep breaths then I remember that that is the worst thing to do when you are having anxiety attacks. You become so much more aware of your breathing then your heart races like crazy and before you know it your having a full on panic attack.
I’d like to ask for a peaceful heart, cause right now mine is out of control, it hurts even.
No pain that what I had done today works.
That my neck pain leaves and the root canal was on the right tooth.
It’s hard to think when you have had days and days of pain eh.
I’d like to ask for a peaceful heart, cause right now mine is out of control, it hurts even.
No pain that what I had done today works.
That my neck pain leaves and the root canal was on the right tooth.
It’s hard to think when you have had days and days of pain eh.
Monday, December 14, 2009
I’m so proud of myself
I’ve been wanting to put some items on eBay for a long time. Only the though of actually putting all the information together adding photo’s, figuring out how to do it, was a little to much. Too much time passed as a result. Well I did it 7days ago.
Tonight it sold for $62 only I made a mistake with the description should be a big deal but I want good feed back. I have offered the buy a way out or $10 back. It was only small so we shall see. She has already paid 2 mins after she brought the Breast pump.
So now I wait to see what she does. it's only been used 3 times as the same day my Pump n Style turned up.>
I have my pump n style to go in 3 days. They have been going for around $320. Please pray I get at least that, it’s for Zhenya other wise I wouldn’t ask for prayers ;-) I paid around $520 + postage it's an awesome pump. I brought new parts for this as well hoping it will attract more buyers. this pump has so many memories, tears, pain.........
no-one ever tells you that baby's dotn like defrosted breast milk. nothing prepares you when you realise you have to tip out 10 litres of Breast milk. all those hours down the sink.
still hurts all this time later
giving the money to Zhenya will really help heal the pain.
had to find this photo's on-line so glad i had them posted on ABA lol
Think I could become addicted to selling stuff on eBay to raise money. Only now I wish I never dropped all those bags of clothes, toys, books so much stuff into the charity bins.
Tonight it sold for $62 only I made a mistake with the description should be a big deal but I want good feed back. I have offered the buy a way out or $10 back. It was only small so we shall see. She has already paid 2 mins after she brought the Breast pump.
So now I wait to see what she does. it's only been used 3 times as the same day my Pump n Style turned up.>
I have my pump n style to go in 3 days. They have been going for around $320. Please pray I get at least that, it’s for Zhenya other wise I wouldn’t ask for prayers ;-) I paid around $520 + postage it's an awesome pump. I brought new parts for this as well hoping it will attract more buyers. this pump has so many memories, tears, pain.........
no-one ever tells you that baby's dotn like defrosted breast milk. nothing prepares you when you realise you have to tip out 10 litres of Breast milk. all those hours down the sink.
still hurts all this time later
giving the money to Zhenya will really help heal the pain.
had to find this photo's on-line so glad i had them posted on ABA lol
Think I could become addicted to selling stuff on eBay to raise money. Only now I wish I never dropped all those bags of clothes, toys, books so much stuff into the charity bins.
Sunday, December 13, 2009
Early Intervention
I'm wondering why we are told early intervention is all that, then are never given any????I wonder if Aden would have benefited? he's doing so good without, i wonder what could have been? a lot less figgen guilt on my part, all those hours of sifting through programs I have no degree in knowing if it's a rip of, something created to guilt parents into thinking our kids with SN need to have. hours making cards, that are then tossed to the floor.well I'm feeling a panic coming on.... I do have to wonder though is it really all it's cracked up to be? or is our Pead right that the best EI for Aden is having older brothers and a sister?
Or are we told siblings are the best therapy, to try and pacify us knowing full well our kids are missing out.
we shall never know._____________________________________________
here is an online panic attack i had when Aden was 2.5yrs. nothing has changed2.5 years is how much time, Aden has been stuffed around with therapy for.
But before you read encase you don’t lol, this is the update.
She did call me back there is nothing through Distant ed for kids with disability’s we are discriminated against.
Aden has seen a ST 3 times and every dam time she comes out, she does another assessment. Why? Because it’s been 3 mths since the visit before.
----------------------
Well I’m sick of this, the government says that our kids with special needs, need to start school from birth they call it Early Intervention, also the government has realised here in Queensland that all children (typically able as well as special needs children) need to start education earlier, and Queensland has started a Prep year to bring us in line with other states.
So here we (Aden and I) are siting in a town with no early intervention program, available to us.
We had an early intervention teacher a few times, and now there is no-one, and I’m sick of it. I’m sick of knowing that my child is missing out.
So I rang Distant education QLD, poor woman, was like “Oh no” with a nervey laugh “we work the same as schools in Qld we don’t take children under 5years old, you said your son is 2 and a half didn’t you?’
Me "yes I did, I also said he has down syndrome and the Government believes that my child needs to start school from birth, it’s a 1hour 50minute drive to the nearest Public government school, for children birth to 5 years.
I’m worried my child is missing out, I’m siting here feeling like a failure of a mother. But there is a mental health service for that. I’m doing my best but I’m no teacher”
The poor lady “well no your not”
Me “yes and all those other children are receiving an education, free, from the government, and I’m trying to figure out what educational things to by my son, no one to tell me this is a rip off or get this it works well. or just handed stuff like all those other parents that have access to Early Intervention teachers, actually I’m really starting to stress.cant you just feel my panic he’s missed out on 2.5 years and only has 2.5 years to go, what do I do? I cant stand this”
Poor Lady “ well about 15years ago we had Distant education for disabled children, hang on a minute and I’ll make a call”
Now she has to phone me back as the person she called is not available…I’m sick of this you guy’s
There is absolutely no need for us to be trying to figure this out, the government, has a plan of action in place for city kids.
I want the same for Aden, what ever those kids have access to, so to should Aden..
Wish me luck, in getting some type of program for him. I’m really upset for him. You know it’s only 2hours away to that SEDU I feel like packing up the kids and heading their for the day tomorrow and saying “well here we are ready for our share of education” Stuff it Aden is entitled to the same as every other child in Queensland
Or are we told siblings are the best therapy, to try and pacify us knowing full well our kids are missing out.
we shall never know._____________________________________________
here is an online panic attack i had when Aden was 2.5yrs. nothing has changed2.5 years is how much time, Aden has been stuffed around with therapy for.
But before you read encase you don’t lol, this is the update.
She did call me back there is nothing through Distant ed for kids with disability’s we are discriminated against.
Aden has seen a ST 3 times and every dam time she comes out, she does another assessment. Why? Because it’s been 3 mths since the visit before.
----------------------
Well I’m sick of this, the government says that our kids with special needs, need to start school from birth they call it Early Intervention, also the government has realised here in Queensland that all children (typically able as well as special needs children) need to start education earlier, and Queensland has started a Prep year to bring us in line with other states.
So here we (Aden and I) are siting in a town with no early intervention program, available to us.
We had an early intervention teacher a few times, and now there is no-one, and I’m sick of it. I’m sick of knowing that my child is missing out.
So I rang Distant education QLD, poor woman, was like “Oh no” with a nervey laugh “we work the same as schools in Qld we don’t take children under 5years old, you said your son is 2 and a half didn’t you?’
Me "yes I did, I also said he has down syndrome and the Government believes that my child needs to start school from birth, it’s a 1hour 50minute drive to the nearest Public government school, for children birth to 5 years.
I’m worried my child is missing out, I’m siting here feeling like a failure of a mother. But there is a mental health service for that. I’m doing my best but I’m no teacher”
The poor lady “well no your not”
Me “yes and all those other children are receiving an education, free, from the government, and I’m trying to figure out what educational things to by my son, no one to tell me this is a rip off or get this it works well. or just handed stuff like all those other parents that have access to Early Intervention teachers, actually I’m really starting to stress.
Poor Lady “ well about 15years ago we had Distant education for disabled children, hang on a minute and I’ll make a call”
Now she has to phone me back as the person she called is not available…I’m sick of this you guy’s
There is absolutely no need for us to be trying to figure this out, the government, has a plan of action in place for city kids.
I want the same for Aden, what ever those kids have access to, so to should Aden..
Wish me luck, in getting some type of program for him. I’m really upset for him. You know it’s only 2hours away to that SEDU I feel like packing up the kids and heading their for the day tomorrow and saying “well here we are ready for our share of education” Stuff it Aden is entitled to the same as every other child in Queensland
A Story about a Skate Boards By Matt 5yrs 11mths
Written by Matthew all by himself with no help or guidance ;-)
A Story about a skate board
Ben 10 went
He got on the skate boards
Saturday, December 12, 2009
His name is “Red”
To all of you that don’t know what it means when I child on RR’s name turns “Red” it means. They are living on borrowed time, soon way too soon Zhenya will enter into an institution, if a family doesn’t come forward for him.
After bloging this blog today, I felt a pain in my heart for these children
Logging into RR today just as I do everyday, to see if anyone has come forward for Zhenya, I thought about the horrible day I might read about Zhenya going off to an institution, my heart sank.
Then when I seen his little face, I was frozen with shock to see his name in RED
I just want to die, I feel so bad for him.
Please pray someone somewhere hears God and loves this boy enough to go get him.
Pray also that the things I have on eBay sell, so I can continue to donate money for this sweet boy.
I’m off the pray to beg god to save this child. Ever felt like you want to cut a deal with God?
After bloging this blog today, I felt a pain in my heart for these children
Logging into RR today just as I do everyday, to see if anyone has come forward for Zhenya, I thought about the horrible day I might read about Zhenya going off to an institution, my heart sank.
Then when I seen his little face, I was frozen with shock to see his name in RED
I just want to die, I feel so bad for him.
Please pray someone somewhere hears God and loves this boy enough to go get him.
Pray also that the things I have on eBay sell, so I can continue to donate money for this sweet boy.
I’m off the pray to beg god to save this child. Ever felt like you want to cut a deal with God?
Urgent Plea
copied from RR I cant type out these words other than to type please pray and share
Please Grab This Button!
URGENT PLEA!
Please Grab This Button!
URGENT PLEA!
Please Grab This Button!
URGENT PLEA!
Please Grab This Button!
URGENT PLEA!
Please Grab This Button!URGENT PLEA!
Please Grab This Button!URGENT PLEA!
Please Grab This Button!URGENT PLEA!
Please Grab This Button!URGENT PLEA!
Thursday, December 10, 2009
If you make him angry / Kindy
Hehe Aden had his Kindy orientation day today. It didn’t go to well more on that later.
Mr Kindy asked, if I thought Aden might put these little pins in this mouth.
“umm yes if you make him angry” lol I think I confused Mr Kindy. You see Mr Kindy hasn’t had a child like ours in his class before, he’s been really upfront and let me know that he hasn’t had any training
Then I explained how yesterday, Aden became frustrated while playing with the cork board and hammer. I turned around asked him what was up, he then placed a pin in his mouth and inched his chin forward, opened his mouth to show me, that he had a pin in his mouth.
Then I explained how, after I took the pin from his mouth, before I had a chance to grab the container, he turned it over spilt them all over the table and on the ground.
As quick as he could he was off the chair, tossing and rolling around in the pins, crying and angry he rolled all over them.
He is being a brat
In the room they have a glass jar sitting on a low down table, with a dead snake in it. One of the parents or staff must have brought it in. There is no way they can have that there with Aden he will reach over grab it and smash it on the floor.
I’m really concerned over a few things, was hoping we would have a change to talk about all these things before Kindy started. Hopefully we can still make this happen.
croup it's nasty
Please keep Aden in your thoughts, this croup isnt’ getting any better. I took Aden and Matt as Matt has it as well now, back to the doctor today.
He’s been on AB’s for 4days and has had one day off the steroids for his croup, but it continues to get worse. The doctor here at the moment hasn’t seen Aden with croup so we were a day behind getting AB’s, she couldn’t’ hear it so didn’t think he had it.
I knew though, and started him on steroids and Ventolin the day before he seen her.
I took him back the next day, she panicked slightly when she heard him.
Nothing like how she reacted today when she heard him say “Hi’ you can hear the wet crackling when he talks. Sounds liek spit is coming out his mouth.
She say’s to me, “oh my he is so rattly you can feel it in his ribs. She was holding him around the sides of his chest. I do know though that for her she isn’t familiar with how rattly our kids can be. Away she is thinking Asthma.
I know nothing about Asthma even though Tay was thought to have Asthma for a number of years.
She asked if Aden could use a spacer, he can but not well. I said I’d keep going with the Ventolin through the face marks...
But when will this wetness leave him? it’s horrible. He’s wide awake from the steroids and Ventolin and I’m so over tired. He is getting around fine you wouldn’t know he is sick if you couldn’t’ hear him.
Tomorrow we are going to Kindy for Aden to have a look around. I wouldn’t’ take him but he is so hypo and board that it will be a good distraction. Matthew has a morning in the year 1 classroom he is so excited. I cant believe my boy is heading into year one next year, more on that later.
Please remember to think pray for Aden tomorrow that this croup leaves him. Thanks.
He’s been on AB’s for 4days and has had one day off the steroids for his croup, but it continues to get worse. The doctor here at the moment hasn’t seen Aden with croup so we were a day behind getting AB’s, she couldn’t’ hear it so didn’t think he had it.
I knew though, and started him on steroids and Ventolin the day before he seen her.
I took him back the next day, she panicked slightly when she heard him.
Nothing like how she reacted today when she heard him say “Hi’ you can hear the wet crackling when he talks. Sounds liek spit is coming out his mouth.
She say’s to me, “oh my he is so rattly you can feel it in his ribs. She was holding him around the sides of his chest. I do know though that for her she isn’t familiar with how rattly our kids can be. Away she is thinking Asthma.
I know nothing about Asthma even though Tay was thought to have Asthma for a number of years.
She asked if Aden could use a spacer, he can but not well. I said I’d keep going with the Ventolin through the face marks...
But when will this wetness leave him? it’s horrible. He’s wide awake from the steroids and Ventolin and I’m so over tired. He is getting around fine you wouldn’t know he is sick if you couldn’t’ hear him.
Tomorrow we are going to Kindy for Aden to have a look around. I wouldn’t’ take him but he is so hypo and board that it will be a good distraction. Matthew has a morning in the year 1 classroom he is so excited. I cant believe my boy is heading into year one next year, more on that later.
Please remember to think pray for Aden tomorrow that this croup leaves him. Thanks.
Tuesday, December 8, 2009
A video with Zhenya
I never thought I could raise a cent. I dont have many people following my blog, nor many friends.
I didn’t think we’d get Zhenya to $500 s far Zhenya has $1,419 total but we still need to bring his Christmas fund up to at least $1000 it’s a slow race.
Thank you to everyone that has chipped in. I dont have any way of raising money other than people chipping in. I sent out letters emails and posted on forums asking for any donation of gift’s for a give away. So far to date I’ve received one gift, two others pulled out, and the one gift on it’s own it’s really enough to have a give away.
But I have some items on eBay and desperately hoping they will sell.
Kinda wishing I’d put our money into buying something for a give away but I’ll keep holding onto faith that Zhenya will be next. That a mummy and Daddy somewhere, will find him that they will come for him and take him home, love him like he so desperately needs.
I have to say, I love my Hubby so much. Thank you Craig for everything all you have done…
And I just wanted to add this video. A friend passed this onto me a little while ago.
It’s a video of family going to Zhenya’s orphanage to bring home their Daughter.
The Mum filmed some of the children, and in the background you can see Zhenya. I felt so desperate for her to zoom in on him, but it didn’t happen. Please take a look as you will see Zhenya and you will know without question just how much this boy needs a Mummy to hold him.
My heart brakes for him, that while the other little boy, who is so desperate for the mummy to touch his head just one more time. Little Zhenya didn’t react he looked away back to playing with a sock.
Zhenya has a story to, he had family’s wanting to adopt him, when he was a baby. But his mother hadn’t signed to give up her rights, he was taken off RR. Placed back on after nearly 2years and now he’s getting older and we know it’s much harder for him to find a forever family.
Please keep Zhenya and all the orphans in your prayers, that God will empty those orphanages and each and every child will have a family. Thank you.
I didn’t think we’d get Zhenya to $500 s far Zhenya has $1,419 total but we still need to bring his Christmas fund up to at least $1000 it’s a slow race.
Thank you to everyone that has chipped in. I dont have any way of raising money other than people chipping in. I sent out letters emails and posted on forums asking for any donation of gift’s for a give away. So far to date I’ve received one gift, two others pulled out, and the one gift on it’s own it’s really enough to have a give away.
But I have some items on eBay and desperately hoping they will sell.
Kinda wishing I’d put our money into buying something for a give away but I’ll keep holding onto faith that Zhenya will be next. That a mummy and Daddy somewhere, will find him that they will come for him and take him home, love him like he so desperately needs.
I have to say, I love my Hubby so much. Thank you Craig for everything all you have done…
And I just wanted to add this video. A friend passed this onto me a little while ago.
It’s a video of family going to Zhenya’s orphanage to bring home their Daughter.
The Mum filmed some of the children, and in the background you can see Zhenya. I felt so desperate for her to zoom in on him, but it didn’t happen. Please take a look as you will see Zhenya and you will know without question just how much this boy needs a Mummy to hold him.
My heart brakes for him, that while the other little boy, who is so desperate for the mummy to touch his head just one more time. Little Zhenya didn’t react he looked away back to playing with a sock.
Zhenya has a story to, he had family’s wanting to adopt him, when he was a baby. But his mother hadn’t signed to give up her rights, he was taken off RR. Placed back on after nearly 2years and now he’s getting older and we know it’s much harder for him to find a forever family.
Please keep Zhenya and all the orphans in your prayers, that God will empty those orphanages and each and every child will have a family. Thank you.
Monday, November 16, 2009
Started thyroid meds / what a difference!!!!!!!!!!!
Aden started thyroid medication 11 days ago.
Day 2 we noticed a difference in his energy levels, and felt he was more alert, but that comes with having more energy, eh.
Day 3we had Aden back, the alert little boy that took everything in
Day 4 we were at Play group Kindy, at group time, Aden would run off, well he sat there with the other children.
The teacher held up number cards in random order, the other typical kids, called out the numbers and Aden was their echo.
Then she held up the 6th card, Aden beat them all to it and called out 5! He was so loud lol, all the Mums heads turned the teachers mouth dropped, she let out a little “oh” then quickly pulled herself together, looked at me with a surprised look on her face one that she was trying hard to hide. All I could think to say was “well he is 3years old” lol
Deep in side of me hidden, I was relieved, Aden was back!
We haven’t’ looked at numbers since beginning of the year, Aden had stopped being interested. We haven’t done much of anything. I’m so relieved he remembers, we couldn’t work on anything as his concentration has been zero, as well he would have melt downs. So we did other things, that are just as important, but I’m so grateful to have Aden back. I said that already didn’t I.
The Pead mentioned she was at a conference thingy, were Thyroid in children with Down syndrome was a topic. One of the discussions was, about starting all children with Down syndrome on thyroid medication from day one.
I cant remember what she said exactly, and am not doing her justice here. But the reasoning was something about because kids with Ds, have to battle with development delays and having thyroid as well, adds to their struggles…..Then she didn’t’ go right into it, I’ll have to ask her more.
Also constipation. Um what constipation? Had has been on Movicol ¾ of the full adult does, from a baby, then the last 12mths half of the Movicol halves. Since starting the thyroid meds, we haven’t used it, we are hoping his poos will firm up a bit. I might have to adjust his diet, as we have worked all his life at giving him a diet that didn’t bind him up. All those foods like banana’s that he loves, will be coming back on he menu!
If you are being told your child is borderline for the medication, and we will do a few more tests to see. I’d be pushing to start the meds, I wish we could have started moths ago.
Day 2 we noticed a difference in his energy levels, and felt he was more alert, but that comes with having more energy, eh.
Day 3we had Aden back, the alert little boy that took everything in
Day 4 we were at Play group Kindy, at group time, Aden would run off, well he sat there with the other children.
The teacher held up number cards in random order, the other typical kids, called out the numbers and Aden was their echo.
Then she held up the 6th card, Aden beat them all to it and called out 5! He was so loud lol, all the Mums heads turned the teachers mouth dropped, she let out a little “oh” then quickly pulled herself together, looked at me with a surprised look on her face one that she was trying hard to hide. All I could think to say was “well he is 3years old” lol
Deep in side of me hidden, I was relieved, Aden was back!
We haven’t’ looked at numbers since beginning of the year, Aden had stopped being interested. We haven’t done much of anything. I’m so relieved he remembers, we couldn’t work on anything as his concentration has been zero, as well he would have melt downs. So we did other things, that are just as important, but I’m so grateful to have Aden back. I said that already didn’t I.
The Pead mentioned she was at a conference thingy, were Thyroid in children with Down syndrome was a topic. One of the discussions was, about starting all children with Down syndrome on thyroid medication from day one.
I cant remember what she said exactly, and am not doing her justice here. But the reasoning was something about because kids with Ds, have to battle with development delays and having thyroid as well, adds to their struggles…..Then she didn’t’ go right into it, I’ll have to ask her more.
Also constipation. Um what constipation? Had has been on Movicol ¾ of the full adult does, from a baby, then the last 12mths half of the Movicol halves. Since starting the thyroid meds, we haven’t used it, we are hoping his poos will firm up a bit. I might have to adjust his diet, as we have worked all his life at giving him a diet that didn’t bind him up. All those foods like banana’s that he loves, will be coming back on he menu!
If you are being told your child is borderline for the medication, and we will do a few more tests to see. I’d be pushing to start the meds, I wish we could have started moths ago.
Sunday, November 15, 2009
The Stumbo Family are travelling
Please keep this family in your prayers as they travel to bring Nina home.
Grab This Button
Andy and Ellen have two beautiful daughters, Ellie and Nichole, Nichole has Down syndrome which lead them to a Parenting support forum, Down syn. It was on this forum they learned of Reeces Rainbow and all the waiting orphans. Many of the children on RR have Down syndrome, there are also other children with special needs.
Which is where they seen their daughters face for the first time. Instantly they knew she was a Stumbo and their hearts longed for her to be home, in their arms.
Nina is a beautiful little girl that also happens to have Cerebral Palsy.
I cant wait to see her in her Daddy and Mummy’s arms and am praying for a safe journey for them.
Grab This Button
Andy and Ellen have two beautiful daughters, Ellie and Nichole, Nichole has Down syndrome which lead them to a Parenting support forum, Down syn. It was on this forum they learned of Reeces Rainbow and all the waiting orphans. Many of the children on RR have Down syndrome, there are also other children with special needs.
Which is where they seen their daughters face for the first time. Instantly they knew she was a Stumbo and their hearts longed for her to be home, in their arms.
Nina is a beautiful little girl that also happens to have Cerebral Palsy.
I cant wait to see her in her Daddy and Mummy’s arms and am praying for a safe journey for them.
Sunday, November 8, 2009
Her forever family found her!!!!!!!
Yeah Olga the little girl we pray for, I’m her Pray warrior, her forever family found her. I cant believe, I can believe....I’m so excited. Woo hoo I knew someone would find her, soon, I just knew it. Oh I hope we find out who her family is.
I want to wake Craig right now. I wll it's only 12:30am yes and i'm on RR again looking at these children waiting.
Now please, please dear God help Zhenya not to be overlooked. That is my new pray for Zhenya the he isn’t “overlooked”….
Posts with Olga
I’m holding back the tears here I’m so so so happy.
Look who else found their forever family’s see their photo's on RR at the bottom of this page
Anna,oh I love her just look at how sweet she is.
Marlena, she's adorable
Dennis, yeah Dennis, oh my heart. This boy has my heart they all have my heart yeah Dennis!
and Stephanie, there is something about this sweet girl...I'm so happy for all these beautiful children.
tonight we learnt that possible another angle slipped away. Colleen, we will never forget you Colleen you were loved and prayed for by Karen and her family as well as many others. sweet dreams baby girl.
Friday, November 6, 2009
Paediatric appointments today
awww I have a baby asleep on my lap ok so he is a 14kg 3yrs old toddler but still my baby, hehe typing one handed here.
Both the boys seen their Pead today.
Aden is on medication for his, thyroid, his is under active which is pretty typical in the world of kids with Ds. Our Pead was telling is how she had just come back for a seminar, thyroid was discussed, there was talk about compulsory giving children with Ds at 2yrs of age thyroid medication. The reasoning was, the intellectual delay that come with low thyroid. they felt not giving the thyroid meds means the kids have to deal with the extra delay from the low thyroid.
She didn’t’ say much more just that as of this point the meds aren’t’ compulsory but that may change.
Have we seen delay with Aden? YES!!!!!!!!
We were told that the 12mths blood test would pick up a thyroid problem before we seen signs of a problem. This isn’t’ true and I’m sure that in the USA they test “our kids” every 6mths?
A few mths after Aden tested clear for thyroid, we notices he lack of energy. Within 1week of us noticing he had become so lethargic he didn’t’ move off the lounge chair. When he did, it was at much 3times a day. By the time he climbed off the lounge is was buggered, then he’d lay down and sleep.
That is what prompted us to have bloods taken, we were looking for something a whole lot nastier than thyroid, it’s nasty enough.
3blood test he was right again. We’ve had tests done every 6weeks give a week or two.
His leave isn’t’ too bad ATM it’s 5 cant remember what normal is, better get to know these a little better I think.
Weight, I stress so much about Aden’s weight, there was no need to yeah! Must be his under active thyroid hehe it helps with weight gain.
Aden’s
weight 14kg (50% Ds charts)
height 93cm (95% Ds charts)
head cir…48cm (cant remember where on chart)
I asked about the weight v’s height (still worrying about weight, I couldn’t’ let it go lol) she said it’s fine.
I’m so, so, so happy that he isn’t dealing with ftt (Failure to thrive)
She’s booking Aden into “the eating clinic” see if we can figure out why he chokes on food. I’m scared everyday many times a day when he eats,. He will gag, choke, panic every time he eats something. I seriously hate feeding him. Of cause I do and he is gaining it’s a nightmare though. More on that another time.
Other than that he is perfect as ever.
Matthew has the all clear!!!!!!! YEAH!!!!!!!!
Matthew’s story is long, it’s exhausting and complicated. Which is why we were working with a Pead.
Long store as short as I can as I have a 4:30am start
Matthew developed a fear of using the loo, didn’t’ like the feel of urinating, pooing, breathing (breathing while in the loo) he would hold his breath to start with. Yeah lol we all feel we could hold our breath sometimes but this so to the extreme, he could no-longer use the loo, then shower next came foods, sicking up when seeing new foods.
Then he seen a TV show aimed at kids that talked about the heart and how it “pumped” blood through our body’s. he cried daily many times a day, how he didn’t want a pump in him. Matthew takes all things literally.
He developed vocal tics, movement tics, panic where he’d run across roads not looking.
This ALL started after breaking his arm! Yes, a broken arm. He was left with a broken arm for over 24hours, because the small hospital said it wasn’t broken.
Lucky Mummy knew better and we took him to the city hospital.
Before this though the hospital terrified him in the x-ray room. I have more about this on my private blog though I haven’t’ blog.
At first we were told he might have PDD-nos an ASD. Basically PDD-nos is where a child, has so many odd quirks that they cant be ignored, but not enough in any one basket to meet the requirements of any of the ASD’s.
Today we had to all clear. Matthew has coped well in school and at home over the past 12mths. He still rubs his head creating a bald spot. But this is just a quirk and a way that Matthew has created to help him with his anxiety. It’s not a bad or dangerous thing to do, though it’s not ideal…
The Pead feels that there is no benefit to Matthew having an official Dx as it wont help him in school.
Matthew is above average, reading at a high year two standard, in Prep.
Even if he had the Dx he wouldn’t’ be allocated any aide time. He has a few issues with social things but over all he has friends and is doing well.
The main issue he has at school is his teacher being away. Last term she had most of the term off, preparing for her wedding, this is when Matthew started to rub his hair away. We are working on this.
The pead will continue to monitor Matthew, over the next 12mths. She said he is lucky he is as intelligent as he is, because of this he will learn quickly what is socially expectable and what’s not. we are finding this already. Though I worry for him, I’m his mum…
There has to be a line drawn with what is “normal” and what’s not. Matthew sure has many ASD traits, but he manages these really well, he functions well gets along with kids well, he’s just a little different, or is he? What’s “normal”?
Both the boys seen their Pead today.
Aden is on medication for his, thyroid, his is under active which is pretty typical in the world of kids with Ds. Our Pead was telling is how she had just come back for a seminar, thyroid was discussed, there was talk about compulsory giving children with Ds at 2yrs of age thyroid medication. The reasoning was, the intellectual delay that come with low thyroid. they felt not giving the thyroid meds means the kids have to deal with the extra delay from the low thyroid.
She didn’t’ say much more just that as of this point the meds aren’t’ compulsory but that may change.
Have we seen delay with Aden? YES!!!!!!!!
We were told that the 12mths blood test would pick up a thyroid problem before we seen signs of a problem. This isn’t’ true and I’m sure that in the USA they test “our kids” every 6mths?
A few mths after Aden tested clear for thyroid, we notices he lack of energy. Within 1week of us noticing he had become so lethargic he didn’t’ move off the lounge chair. When he did, it was at much 3times a day. By the time he climbed off the lounge is was buggered, then he’d lay down and sleep.
That is what prompted us to have bloods taken, we were looking for something a whole lot nastier than thyroid, it’s nasty enough.
3blood test he was right again. We’ve had tests done every 6weeks give a week or two.
His leave isn’t’ too bad ATM it’s 5 cant remember what normal is, better get to know these a little better I think.
Weight, I stress so much about Aden’s weight, there was no need to yeah! Must be his under active thyroid hehe it helps with weight gain.
Aden’s
weight 14kg (50% Ds charts)
height 93cm (95% Ds charts)
head cir…48cm (cant remember where on chart)
I asked about the weight v’s height (still worrying about weight, I couldn’t’ let it go lol) she said it’s fine.
I’m so, so, so happy that he isn’t dealing with ftt (Failure to thrive)
She’s booking Aden into “the eating clinic” see if we can figure out why he chokes on food. I’m scared everyday many times a day when he eats,. He will gag, choke, panic every time he eats something. I seriously hate feeding him. Of cause I do and he is gaining it’s a nightmare though. More on that another time.
Other than that he is perfect as ever.
Matthew has the all clear!!!!!!! YEAH!!!!!!!!
Matthew’s story is long, it’s exhausting and complicated. Which is why we were working with a Pead.
Long store as short as I can as I have a 4:30am start
Matthew developed a fear of using the loo, didn’t’ like the feel of urinating, pooing, breathing (breathing while in the loo) he would hold his breath to start with. Yeah lol we all feel we could hold our breath sometimes but this so to the extreme, he could no-longer use the loo, then shower next came foods, sicking up when seeing new foods.
Then he seen a TV show aimed at kids that talked about the heart and how it “pumped” blood through our body’s. he cried daily many times a day, how he didn’t want a pump in him. Matthew takes all things literally.
He developed vocal tics, movement tics, panic where he’d run across roads not looking.
This ALL started after breaking his arm! Yes, a broken arm. He was left with a broken arm for over 24hours, because the small hospital said it wasn’t broken.
Lucky Mummy knew better and we took him to the city hospital.
Before this though the hospital terrified him in the x-ray room. I have more about this on my private blog though I haven’t’ blog.
At first we were told he might have PDD-nos an ASD. Basically PDD-nos is where a child, has so many odd quirks that they cant be ignored, but not enough in any one basket to meet the requirements of any of the ASD’s.
Today we had to all clear. Matthew has coped well in school and at home over the past 12mths. He still rubs his head creating a bald spot. But this is just a quirk and a way that Matthew has created to help him with his anxiety. It’s not a bad or dangerous thing to do, though it’s not ideal…
The Pead feels that there is no benefit to Matthew having an official Dx as it wont help him in school.
Matthew is above average, reading at a high year two standard, in Prep.
Even if he had the Dx he wouldn’t’ be allocated any aide time. He has a few issues with social things but over all he has friends and is doing well.
The main issue he has at school is his teacher being away. Last term she had most of the term off, preparing for her wedding, this is when Matthew started to rub his hair away. We are working on this.
The pead will continue to monitor Matthew, over the next 12mths. She said he is lucky he is as intelligent as he is, because of this he will learn quickly what is socially expectable and what’s not. we are finding this already. Though I worry for him, I’m his mum…
There has to be a line drawn with what is “normal” and what’s not. Matthew sure has many ASD traits, but he manages these really well, he functions well gets along with kids well, he’s just a little different, or is he? What’s “normal”?
Tuesday, November 3, 2009
Christmas Angel Tree Project
Starts now!
I'm asking family and friends, to HELP ME with my fund raiser. I have sighed up to be Zhenya's Christmas Warrior.
The goal is to raise $1000 by Jan 1st 2010. To help me reach this goal you can click on the Chipin button at the top of my blog or at the bottom of this post. thanks so much.
you can donate any amount it all adds to the goal set.
When you donate $35 or more for a child, you will receive a beautiful porcelain photo ornament of your sponsored child to hang on your tree!
On the reverse side, there will be a photo of your sponsored child.
yeah he is so cute!
This is a very special way to "share Christmas" with an orphaned child, and to make it possible for other families to afford the high cost of rescuing them from orphanages and mental institutions around the world!
This is also a very personal and meaningful GIFT IDEA, and gift cards will be sent with the ornament to your intended recipient.
more here
there are 166 children on Reece's Rainbow waiting for their Forever family's to find them.
you can choose to donate to as many of these children as you like.
see this page of all their beautiful faces again if you send $35 or more you will receive the Christmas ornament, with your childs face on the reverse side.
Please remember to include the name of child you would like to sponsor , when you pay through pay pal.
thank you all so very much
Cathy and Aden.
Bigger
Saturday, October 24, 2009
Christmas gift for hard to buy for
How many times have you thought about giving the gift of a donation, on someone’s behalf ? I know I have, sometime I think, why did I walk around for hours and hours and settle, for some gift my mum, Nana, DH’s mother and father will never use. Then I do it again, yet every year I think, I could have handed them a card letting them know, the money I was going to spend went to an Orphan / hungry child….life line…
So this year I’m doing it!
In just over a week, Reece’s Rainbow will be launching their Christmas Angel tree project if you dont celebrate Christmas you can still join in, there are ideas on the web site so everyone can be included.
The plan each year, is for every child on the site to have a person / family to pray for them and raise money. To do this become a Christmas warrior The goal is, for each child to have someone praying and advocating for them for Christmas, and the $ aim is $1000 per child. Though any amount is fine.
I cant see myself getting to $1000 and I’m scared, so scared I wasn’t going to do it.
But then I thought of how brave Zhenya and all the little children and babies’ are, that live every day the way they do, without a mummy and a daddy. So I’m signed up.
That is one way of helping, but if you feel that is too much to take on, there are other ways you can help.
One option is, to help me, in getting to my $1000 target. Stop by my blog after the 2nd of November and purchases an ornament. This will help me raise money for Zhenya.
Or sign up to pray for a child. And on Noverber 2nd RR will have a link up where you can view every child on their books. From this link you can choose a child to pray for, raise money for.
or you can buy a Christmas ornament for a friend or relative. $35, choose the child you would like the money to go towards. this money goes directly to the child you choose. And they money does stay with that child. If the child is put into an institution or dies before his / her forever family find them, that money is then giving to the child next on the list that is “Most at risk” of dieing if not rescued or put in an institution.
This is your chance to help from as little as $35.
I’m going to buy my Mum and her husband one, this is a cheap Christmas gift for the two of them and they will love it.
Also DH’s family and a few others.
If $35 is a little out of the budget, you can give any amount. Only you wont receive a Ornament. You could however pop the recept in a Christmas card, I’ll try thinking of other things you can do.
I’ll post more later just wanted to give idea’s for hard to buy for people.
Thanks for taking the time to read. Hope this helps with those trickly people to buy for.
So this year I’m doing it!
In just over a week, Reece’s Rainbow will be launching their Christmas Angel tree project if you dont celebrate Christmas you can still join in, there are ideas on the web site so everyone can be included.
The plan each year, is for every child on the site to have a person / family to pray for them and raise money. To do this become a Christmas warrior The goal is, for each child to have someone praying and advocating for them for Christmas, and the $ aim is $1000 per child. Though any amount is fine.
I cant see myself getting to $1000 and I’m scared, so scared I wasn’t going to do it.
But then I thought of how brave Zhenya and all the little children and babies’ are, that live every day the way they do, without a mummy and a daddy. So I’m signed up.
That is one way of helping, but if you feel that is too much to take on, there are other ways you can help.
One option is, to help me, in getting to my $1000 target. Stop by my blog after the 2nd of November and purchases an ornament. This will help me raise money for Zhenya.
Or sign up to pray for a child. And on Noverber 2nd RR will have a link up where you can view every child on their books. From this link you can choose a child to pray for, raise money for.
or you can buy a Christmas ornament for a friend or relative. $35, choose the child you would like the money to go towards. this money goes directly to the child you choose. And they money does stay with that child. If the child is put into an institution or dies before his / her forever family find them, that money is then giving to the child next on the list that is “Most at risk” of dieing if not rescued or put in an institution.
This is your chance to help from as little as $35.
I’m going to buy my Mum and her husband one, this is a cheap Christmas gift for the two of them and they will love it.
Also DH’s family and a few others.
If $35 is a little out of the budget, you can give any amount. Only you wont receive a Ornament. You could however pop the recept in a Christmas card, I’ll try thinking of other things you can do.
I’ll post more later just wanted to give idea’s for hard to buy for people.
Thanks for taking the time to read. Hope this helps with those trickly people to buy for.
Saturday, October 17, 2009
A personal letter to my family and friends
It’s National Down syndrome Awareness Week, this week 11 to the 18Oct
All month, I wanted to do something to bring about some awareness, tell people how much I wish they could feel and know what I have come to know, since having my child. How many times can I say, how perfect he is, without becoming a broken record?
So I’ve done nothing as usual, I read many blog where friends shared about how having a child with Ds has changed them. But still I couldn’t think of anything to post/email about.
I’m the sort of person that only acts when I feel lead by God. Though I’m sure God would argue that.
You see the sentence above sounds as though, as soon as I hear God, I act. Hmm if only that were true, I sit on it, wait and see if he will leave me be, and then after some time, I panic that he might just let me be and I act, or he just doesn’t let us….
Well enough about that.
So I’m not going to tell you all how perfect my son is, or how much joy he has brought to our lives, or how people with Ds have young mothers, or how people with Down syndrome DO attend main stream school, because they are intelligent! you just don’t know their capabilities yet, because they haven’t been given the opportunity’s to succeed …………as well….
I’m not going to brag on about, how MORE children with Ds (when compared to typically developing children), play a musical instrument, clean their bedroom the first time they are asked.. Nor will I explain the Flop and Drop, to mothers that will never experience it. Hehehe.
And to be honest here, knowing what to share has weighted on my heart for 3yrs, for each year since Aden has been born, I have felt clueless as what to share.
Yeah, I stuck up posters around town, IGA, Doctors surgery and at our local school, felt guilty for missing Primary Colour Day on the16th October. Oooops
The thing is, I don’t feel right being happy. I felt I should share about these children the “waiting children” bring awareness to you all that hundreds of children with Down syndrome don’t have a mother or a father and have been left to die if Americans don’t save them, if Australians don’t pray and pay.
When I think about how lucky I am to have Aden today 2009, and how lucky there isn't institutions here “we don’t put these children in institutions anymore” my heart bleeds. It’s a lie, we do still lock these children away and we all allow it to happen.
Then I think about, how when I share about these children, I have to face all those that say …, about how this is why abortions should be everyone’s right and don’t tell me about children suffering in institutions because, if abortions were legalized…these children wouldn’t’ be suffering….” so then what can I possible share?
So I prayed and while having a shower it came to me, I knew right then what I needed to say.
There is a little boy sitting in an orphanage waiting, he is waiting with many others, waiting for love. His life IS worth living, his life gave me reason to act, his sweet face, his heart will forever be with mine our souls connected though we will never meet.
He gave me reason to start praying, he gave me reason to scream out to our God in prayer to move mountains and empty those institutions.
His life is worth living, his life is worthwhile, he needs a mummy and daddy a family.
Please pray with me, pray that God will hear us and he will empty out those institution all over the world just as he did here.
I can be happy knowing that God will answer our prayers, I have faith that he will move mountains. I struggle with faith so much, but this I know to be true, it’s easy as I have already witnessed it in my time, when he emptied out Institutions here.
Become a Prayer Warrior today it’s FREE pray with me and pray with so many others, we can make a difference. God is listening. And let face it, money will help family’s with the adoption cost, we cant get around that, it’s just how it is.
There are many family’s that would adopt if they could afford to, also most countries ask that both parents travel to the country for court dates.. Ask yourself ‘how could your family manage this? I know for us it would be extremely hard for Craig to have time away from work…
Donations help with this added expense, all donation go directly to the child of your choice.
Here is a link to the many waiting children.
John 14:13-14 "And I will do whatever you ask in my name, so that the Son may bring glory to the Father. You may ask me for anything in my name, and I will do it" .
Matthew 17:20 "I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you"
Aden is living today, the life he has because others before him have lived a life in institutions and died. God heard the many tears and prayers. Governments stood up and listened when the people said No-more. We can make a difference we can change these other country’s minds.
Thank you my family and friends.
Cathy
All month, I wanted to do something to bring about some awareness, tell people how much I wish they could feel and know what I have come to know, since having my child. How many times can I say, how perfect he is, without becoming a broken record?
So I’ve done nothing as usual, I read many blog where friends shared about how having a child with Ds has changed them. But still I couldn’t think of anything to post/email about.
I’m the sort of person that only acts when I feel lead by God. Though I’m sure God would argue that.
You see the sentence above sounds as though, as soon as I hear God, I act. Hmm if only that were true, I sit on it, wait and see if he will leave me be, and then after some time, I panic that he might just let me be and I act, or he just doesn’t let us….
Well enough about that.
So I’m not going to tell you all how perfect my son is, or how much joy he has brought to our lives, or how people with Ds have young mothers, or how people with Down syndrome DO attend main stream school, because they are intelligent! you just don’t know their capabilities yet, because they haven’t been given the opportunity’s to succeed …………as well….
I’m not going to brag on about, how MORE children with Ds (when compared to typically developing children), play a musical instrument, clean their bedroom the first time they are asked.. Nor will I explain the Flop and Drop, to mothers that will never experience it. Hehehe.
And to be honest here, knowing what to share has weighted on my heart for 3yrs, for each year since Aden has been born, I have felt clueless as what to share.
Yeah, I stuck up posters around town, IGA, Doctors surgery and at our local school, felt guilty for missing Primary Colour Day on the16th October. Oooops
The thing is, I don’t feel right being happy. I felt I should share about these children the “waiting children” bring awareness to you all that hundreds of children with Down syndrome don’t have a mother or a father and have been left to die if Americans don’t save them, if Australians don’t pray and pay.
When I think about how lucky I am to have Aden today 2009, and how lucky there isn't institutions here “we don’t put these children in institutions anymore” my heart bleeds. It’s a lie, we do still lock these children away and we all allow it to happen.
Then I think about, how when I share about these children, I have to face all those that say …, about how this is why abortions should be everyone’s right and don’t tell me about children suffering in institutions because, if abortions were legalized…these children wouldn’t’ be suffering….” so then what can I possible share?
So I prayed and while having a shower it came to me, I knew right then what I needed to say.
There is a little boy sitting in an orphanage waiting, he is waiting with many others, waiting for love. His life IS worth living, his life gave me reason to act, his sweet face, his heart will forever be with mine our souls connected though we will never meet.
He gave me reason to start praying, he gave me reason to scream out to our God in prayer to move mountains and empty those institutions.
His life is worth living, his life is worthwhile, he needs a mummy and daddy a family.
Please pray with me, pray that God will hear us and he will empty out those institution all over the world just as he did here.
I can be happy knowing that God will answer our prayers, I have faith that he will move mountains. I struggle with faith so much, but this I know to be true, it’s easy as I have already witnessed it in my time, when he emptied out Institutions here.
Become a Prayer Warrior today it’s FREE pray with me and pray with so many others, we can make a difference. God is listening. And let face it, money will help family’s with the adoption cost, we cant get around that, it’s just how it is.
There are many family’s that would adopt if they could afford to, also most countries ask that both parents travel to the country for court dates.. Ask yourself ‘how could your family manage this? I know for us it would be extremely hard for Craig to have time away from work…
Donations help with this added expense, all donation go directly to the child of your choice.
Here is a link to the many waiting children.
John 14:13-14 "And I will do whatever you ask in my name, so that the Son may bring glory to the Father. You may ask me for anything in my name, and I will do it" .
Matthew 17:20 "I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, 'Move from here to there' and it will move. Nothing will be impossible for you"
Aden is living today, the life he has because others before him have lived a life in institutions and died. God heard the many tears and prayers. Governments stood up and listened when the people said No-more. We can make a difference we can change these other country’s minds.
Thank you my family and friends.
Cathy
Tuesday, September 29, 2009
“I am, the voice of my friends who can not speak”
Motivational Speaker, Robert Pio Hajjar, born with Down syndrome, Founder of the charity IDEAL-WAY.
I loved when he said “I am, the voice of my friends who can not speak”
I loved when he said “I am, the voice of my friends who can not speak”
Wednesday, September 23, 2009
An Orphan's Prayer
I found this prayer on the Stumbo family adoption blog
I am waiting…somewhere far…far away
on the other side of the world.
I may not know who you are or what you look like
But some how deep in my heart I know you are out there.
That one day you will come and find me.
It’s a long journey, and it takes a lot of time…
I wish it could be easier.
But I know that the ones who come for me
will not count the cost.
They will only see the joy of finding me.
For now I abide in the fields of the fatherless.
Day by day wondering why I was born here
and not somewhere else?
Asking…why my life couldn’t have been different?
It is so lonely…Even though I am surrounded by
hundreds of other children,
I know that something is missing…
I know in my heart I need a place to call home.
My arms long to be wrapped in a father’s embrace…
I long to be saved by a mother’s love…
Gazing out the orphanage window I offer a
prayer of hope,“Oh God please help them
come quickly.”
Even as I lay in the darkness of each night
somehow I feel assured,
That no matter how lost I appear I am not alone.
Holy hands guard my steps; sacred fingers wipe
my tears, touching my lonely heart.
The one who made me,
The God that knew me before I was born
Hears me every time I call
He whispers His promises in my ear.
I listen with hope to His voice.
But what I worry about most is that no one wants to look for me.
The fields are vast and there are so many scattered all over the earth.
I wonder how one little child, so lost, can be found?
Yet He calms my heart and assures me that He will find you.
That He will make sure that you hear His voice clearly.
He has promised me that He will make a way through the fields,
That He will personally cut a path and lead you right to my orphanage door.
My prayer is…When He speaks…Please don’t forget to listen…
When He calls don’t be too afraid to go
For I am waiting…somewhere, far…far…away
On the other side of the world
To come Home
I am waiting…somewhere far…far away
on the other side of the world.
I may not know who you are or what you look like
But some how deep in my heart I know you are out there.
That one day you will come and find me.
It’s a long journey, and it takes a lot of time…
I wish it could be easier.
But I know that the ones who come for me
will not count the cost.
They will only see the joy of finding me.
For now I abide in the fields of the fatherless.
Day by day wondering why I was born here
and not somewhere else?
Asking…why my life couldn’t have been different?
It is so lonely…Even though I am surrounded by
hundreds of other children,
I know that something is missing…
I know in my heart I need a place to call home.
My arms long to be wrapped in a father’s embrace…
I long to be saved by a mother’s love…
Gazing out the orphanage window I offer a
prayer of hope,“Oh God please help them
come quickly.”
Even as I lay in the darkness of each night
somehow I feel assured,
That no matter how lost I appear I am not alone.
Holy hands guard my steps; sacred fingers wipe
my tears, touching my lonely heart.
The one who made me,
The God that knew me before I was born
Hears me every time I call
He whispers His promises in my ear.
I listen with hope to His voice.
But what I worry about most is that no one wants to look for me.
The fields are vast and there are so many scattered all over the earth.
I wonder how one little child, so lost, can be found?
Yet He calms my heart and assures me that He will find you.
That He will make sure that you hear His voice clearly.
He has promised me that He will make a way through the fields,
That He will personally cut a path and lead you right to my orphanage door.
My prayer is…When He speaks…Please don’t forget to listen…
When He calls don’t be too afraid to go
For I am waiting…somewhere, far…far…away
On the other side of the world
To come Home
Friday, September 18, 2009
some useful posters
I particularly like the poster for kids as well as one for parents without a child with Ds. I like and have always agreed with, what they say about allowing a child to notice kids with Ds are diffracting and some great tips about what parents can say to their children. I will be taking notes, for my own son who’s 5yrs and already asking questions about his brother.
from Down syndrome QLD
Language and Terminology
Down syndrome – for the kids
Information for parents (that don’t have a child with Down syndrome)
About Down syndrome
Separating fact from fiction
from Down syndrome QLD
Language and Terminology
Down syndrome – for the kids
Information for parents (that don’t have a child with Down syndrome)
About Down syndrome
Separating fact from fiction
Sunday, September 13, 2009
Zhenya
every time I look at your sweet face, into your beautiful eyes, my heart brakes. It’s difficult knowing you are sitting in an Orphanage, not just any orphanage but a poor one in Eastern Europe.
Sitting and waiting, I have no idea what the orphanage where you are is like, I’m guessing it’s not good. I wonder if you have toys, enough food and a warm blanket. I wonder if you are picked up when you cry?
We are praying for a Mummy and daddy for you, you cant stay too long in such a place. I’m scared for you. It’s hard to trust God, when so many children die in orphanages just like the one your in. tonight I will continue to pray for you and for me to have faith.
I woke up a few nights ago, from a dream. In my dream a Mummy and Daddy were searching for you, but they were looking in more privileged orphanages, then family after family were doing the same taking home other children, your Mummy and Daddy were still searching for you Zhenya.
I wish I could tell you they are coming, that they will find you, and you will be loved and cuddled to sleep soon.
Our tears will not stop flowing until you are home, with your Mummy and Daddy.
we love you big boy.
Sitting and waiting, I have no idea what the orphanage where you are is like, I’m guessing it’s not good. I wonder if you have toys, enough food and a warm blanket. I wonder if you are picked up when you cry?
We are praying for a Mummy and daddy for you, you cant stay too long in such a place. I’m scared for you. It’s hard to trust God, when so many children die in orphanages just like the one your in. tonight I will continue to pray for you and for me to have faith.
I woke up a few nights ago, from a dream. In my dream a Mummy and Daddy were searching for you, but they were looking in more privileged orphanages, then family after family were doing the same taking home other children, your Mummy and Daddy were still searching for you Zhenya.
I wish I could tell you they are coming, that they will find you, and you will be loved and cuddled to sleep soon.
Our tears will not stop flowing until you are home, with your Mummy and Daddy.
we love you big boy.
Saturday, September 12, 2009
the boys are home, we have the AFO's
This is our last family post for this blog.
we have moved over to sOnshine-everyday If you would like to log in over there leave me a message with your email address or Pm me on one of the forums and I’ll add you. I wont publish email addresses.
Here he is my darling boy! God delivered Aden and Daddy safely home, I worry way too much….
and here are the AFO's
See his little grin???? awww how cute
uh oh, Aden lent back, the back brakes work but not on our tiles ugh
When Aden takes a step, he is stomping with his heel, which is putting some strain on her knee joint,. but nothing like before. the Ortho said not to walk him around for a week or two, just to let his strength build first. Mummy couldn't wait though. he did say it wont hurt Aden, nothing could be as bad for him as having nothing....
These are completely moulded with innersoles, as well as being a shoe.
As Aden becomes stronger, we remove one band than the other. This saves having to have a new pair made up with hinges. These AFO’s are TWO in one, we love them. We love them for Aden as well as saving us travel
Matt had to have a turn, he looks to be acting hurt or something crazy kid.
we have moved over to sOnshine-everyday If you would like to log in over there leave me a message with your email address or Pm me on one of the forums and I’ll add you. I wont publish email addresses.
Here he is my darling boy! God delivered Aden and Daddy safely home, I worry way too much….
and here are the AFO's
See his little grin???? awww how cute
uh oh, Aden lent back, the back brakes work but not on our tiles ugh
When Aden takes a step, he is stomping with his heel, which is putting some strain on her knee joint,. but nothing like before. the Ortho said not to walk him around for a week or two, just to let his strength build first. Mummy couldn't wait though. he did say it wont hurt Aden, nothing could be as bad for him as having nothing....
These are completely moulded with innersoles, as well as being a shoe.
As Aden becomes stronger, we remove one band than the other. This saves having to have a new pair made up with hinges. These AFO’s are TWO in one, we love them. We love them for Aden as well as saving us travel
Matt had to have a turn, he looks to be acting hurt or something crazy kid.
AFO's in two days....!!!!!!!!
Aden and his Daddy, today drove down to Brisbane. I stayed home with the other kids as Tay has assignments, it’s killing me, and the stress of being away from my darling boy, has caused me to have a few anxiety attacks, I’m so going to loose my hair from this, in 3 mths (that is how long it takes after stress for your hair to fall out, I should know)
So what are they up to and what might you all be sick of hearing? Aden is being fitted into his AFO’s (Ankle foot orthotics) tomorrow, today they picked up his walking frame. Yep its second hand lol but they this is only for a few months, I’ve been assured Aden wont need it long.
My boy will finally be walking! At 3 years 8 mths. We have all waited a long time, since those first steps.
Why oh why did I ever pray for patients? My sister has a lot to answer for. Hahaha
It’s been a long, long road, one that never had to be this long. We are grateful to all who prayed, sent angles, love and light, to our needs for Aden to be meet.
God answered these prayers, sending up a new less qualified Physio therapist, who stepped up and made this all possible.
Tomorrow night they will be home. I cant wait! I cant wait to see my baby boy walk more than a few steps. I’ll post video as soon as I can and photo’s
So what are they up to and what might you all be sick of hearing? Aden is being fitted into his AFO’s (Ankle foot orthotics) tomorrow, today they picked up his walking frame. Yep its second hand lol but they this is only for a few months, I’ve been assured Aden wont need it long.
My boy will finally be walking! At 3 years 8 mths. We have all waited a long time, since those first steps.
Why oh why did I ever pray for patients? My sister has a lot to answer for. Hahaha
It’s been a long, long road, one that never had to be this long. We are grateful to all who prayed, sent angles, love and light, to our needs for Aden to be meet.
God answered these prayers, sending up a new less qualified Physio therapist, who stepped up and made this all possible.
Tomorrow night they will be home. I cant wait! I cant wait to see my baby boy walk more than a few steps. I’ll post video as soon as I can and photo’s
Sunday, September 6, 2009
He brought me out of ignorance
After my son Aden, was born with Down syndrome and after the shock that came with his Diagnoses. I remember thinking, thank you God, that Aden was born in 2006, a time when I’m not expected to place him in an institution, give him up…
Also I remember wondering, how these parents, handed over there baby’s’ / children. Of cause I was completely ignorant, my only thought was that these children weren’t wanted.
Images of children in Orphanages, spread over the internet, one little boy caught my eye.
I posted on my favourite forums at the time, I cried for him, prayed for him. I stayed up unable to sleep, thinking of him. I dotn know what even happened to him, if he found a family or not...
Sweet baby boy, I can only hope {this is what I tell myself} that you were being wrapped for your own comfort just as some baby’s will only sleep while wrapped.
Another image, was of an older man, still in his cot. A grown man with Down syndrome that spent his life in a cot.
God, he answered my prayers, as I came across this you tube video of a family that loved their son, and placed him in an institution because they were told it was, best for their son to be with, others like him.
Oh how my heart brakes for this family. And how my heart aches that I had such a hard time, coming to terms with Aden having Ds, as images of Adults with Ds flooded my ignorant brain. Dear God I’m so sorry, for my ignorance. I’m so very, very grateful that you have brought Aden to our lives. Thank you.
Sadly I was so wrong to believe that in 2006 and even now 2009, that these places no longer exists. They do, so many, many of our children are heading there right now, others are facing this possibility, unless an American Family bring them home.
Dear little Zhenya, I’m praying hard a mummy and daddy find you before you are moved on.
“He was like other boys”
Footage from before he was in an institution, running around like a ‘typical boy”
Footage, Birthday party, playing in he yard as a regular boy, to heading off to the home.
His poor parents, sister…my heart goes out to them.
Also I remember wondering, how these parents, handed over there baby’s’ / children. Of cause I was completely ignorant, my only thought was that these children weren’t wanted.
Images of children in Orphanages, spread over the internet, one little boy caught my eye.
I posted on my favourite forums at the time, I cried for him, prayed for him. I stayed up unable to sleep, thinking of him. I dotn know what even happened to him, if he found a family or not...
Sweet baby boy, I can only hope {this is what I tell myself} that you were being wrapped for your own comfort just as some baby’s will only sleep while wrapped.
Another image, was of an older man, still in his cot. A grown man with Down syndrome that spent his life in a cot.
God, he answered my prayers, as I came across this you tube video of a family that loved their son, and placed him in an institution because they were told it was, best for their son to be with, others like him.
Oh how my heart brakes for this family. And how my heart aches that I had such a hard time, coming to terms with Aden having Ds, as images of Adults with Ds flooded my ignorant brain. Dear God I’m so sorry, for my ignorance. I’m so very, very grateful that you have brought Aden to our lives. Thank you.
Sadly I was so wrong to believe that in 2006 and even now 2009, that these places no longer exists. They do, so many, many of our children are heading there right now, others are facing this possibility, unless an American Family bring them home.
Dear little Zhenya, I’m praying hard a mummy and daddy find you before you are moved on.
“He was like other boys”
Footage from before he was in an institution, running around like a ‘typical boy”
Footage, Birthday party, playing in he yard as a regular boy, to heading off to the home.
His poor parents, sister…my heart goes out to them.
Friday, September 4, 2009
Our first mini goal
Zhenya’s sponsors page
Zhenya has made it onto the page where children have more than $500 in their Grant funds.
Woo hoo, thanks to those that chipped in, not sure who the last sponsor was but thank you, thank you for getting Zhenya to the $500 mark.
Be sure to see his sweet face, on the “pick me page”
Many new parents start looking in the pick me pages for children with grants, these grants can save a Childs life. so many parents wanting to adopt, these precious children, the cost often getting in the way.
Even if we could adopt from Australia, I have no idea how we could take the time off work {often both parents, need to travel for court dates, staying weeks at a time, in foreign country‘s the costs add up.
Please be sure to visit our PICK ME! page, which highlights those children with more than $500 in grant funds available!
Zhenya has made it onto the page where children have more than $500 in their Grant funds.
Woo hoo, thanks to those that chipped in, not sure who the last sponsor was but thank you, thank you for getting Zhenya to the $500 mark.
Be sure to see his sweet face, on the “pick me page”
Many new parents start looking in the pick me pages for children with grants, these grants can save a Childs life. so many parents wanting to adopt, these precious children, the cost often getting in the way.
Even if we could adopt from Australia, I have no idea how we could take the time off work {often both parents, need to travel for court dates, staying weeks at a time, in foreign country‘s the costs add up.
Please be sure to visit our PICK ME! page, which highlights those children with more than $500 in grant funds available!
how to block a follower?
Update, thank you Peggy for solving this for me. it was so simply lol
The person was promoting uni stuff, but his freaky winged creature for his avatar photo was horrid glad it’s gone thanks.
Does anyone know how to block, people signing up as friends? I have someone that is selling stuff sign up as a Follower on my family blog. I cant work out how to delete them.
Till I can I’ve hidden my blog
Thanks hoping someone can help
The person was promoting uni stuff, but his freaky winged creature for his avatar photo was horrid glad it’s gone thanks.
Does anyone know how to block, people signing up as friends? I have someone that is selling stuff sign up as a Follower on my family blog. I cant work out how to delete them.
Till I can I’ve hidden my blog
Thanks hoping someone can help
Monday, August 24, 2009
Praying for Tanner
Grab This Button
Please keep Tanner and his mummy in your prayers today.
Tanner turns 5 yrs old today, he wont be celebrating like other 5yr olds, he wont be snuggled, kissed and loved by his mummy and daddy today. No birthday celebrations, no toys.
Instead he faces a possible move to an institution. Depending on the Orphanage, orphaned children are move to institutions from as early as 4 years old. At Tanner’s Orphanage the age is 5yrs.
Please pray with his family that they can get to him, before this move. That he stays in good health and that God moves thing quickly for his family.
It brakes my heart knowing another child will be spending a birthday without a mummy and daddy to love them.
You can visit his Mummy’s blog here Bringing Tanner Home
There are many family’s wanting to adopt children with Down syndrome. Here in Australia we are unable to adopt children with Disability’s from other country’s. In our country, there are around 400 children adopted from, overseas country’s.
We can pray and help with the cost of adoption, at the end of the day it’s money that these children need to be free. Their Mummy’s and Daddy’s are there ready to go, raising money, selling items around their homes, working hard to bring these beautiful children home.
Reese’s Rainbow is working hard to change attitudes, in these children’s home country’s. they also need funds to continue there work.
click to visit Reese’s Rainbow.
Wednesday, August 19, 2009
The Creed of Babies with Down Syndrome
My face may be different
But my feelings the same
I laugh and I cryAnd I take pride in my gains
I was sent here among you
To teach you to love
As God in the heavens
Looks down from above
To Him I'm no different
His love knows no bounds
It's those here among you In cities and towns
That judge me by standards
That man has imparted
But this family I've chosen
Will help me get started
For I'm one of the children
So special and few
That came here to learn
The same lessons as you
That love is acceptance
It must come from the heart
We all have the same purpose
Though not the same start
The Lord gave me life
To live and embrace
And I'll do it as you do
But at my own pace
But my feelings the same
I laugh and I cryAnd I take pride in my gains
I was sent here among you
To teach you to love
As God in the heavens
Looks down from above
To Him I'm no different
His love knows no bounds
It's those here among you In cities and towns
That judge me by standards
That man has imparted
But this family I've chosen
Will help me get started
For I'm one of the children
So special and few
That came here to learn
The same lessons as you
That love is acceptance
It must come from the heart
We all have the same purpose
Though not the same start
The Lord gave me life
To live and embrace
And I'll do it as you do
But at my own pace
Monday, August 17, 2009
finally Aden photo's, at Zhenya's age
Zhenya
Aden
Aden
Zhenya, I wish I could kiss yoru sweet face! I pray your Mummy and Daddy are coming for you. 
Aden
AdenAdenZhenya, I wish I could kiss yoru sweet face! I pray your Mummy and Daddy are coming for you. Aden
Sunday, August 16, 2009
How you can sponsor Zhenya
Thank you Andrea for making this widget for Zhenya, for me..
If you have a blog and your reading this thread, could you please paste Zhenya’s chip in button on your blog thanks.
Anyone wanting to donate money, to increase Zhenya’s chances of finding a forever mummy and daddy. You can choose to donate using either the chip in in this post, the chip in to the right of my blog, or go to Reese’s rainbow sponsor Zhenya page
www.reecesrainbow.org/sponsorzhenya.html
Where Andrea has created a page just for us, {you and me} to make sponsoring Zhenya easier.
I pray so hard that someone out there, realises that Zhenya is their little boy.
if i could go get you sweet boy I would be there, we already love you.
Thank you again Andrea for giving us the opportunity to pray, sponsor and know Zhenya as well as all the other beautiful baby’s and children on Reese’s Rainbow.
Please help save another child I’m still waiting for my donation to show up \
Friday, August 14, 2009
No one to make him toast. / Please pray
This is the first photo i seen on Zhenya and I was speechless at how much he looks liek Aden's twin.
This photo broke our hearts to see his cot on the floor. We were concerned about the clod coming through Aden’s cot, so we put a sheepskin under his sheet. We live in North QLD, with 40 degree heat. Zhenya sweet baby boy, we are praying for a family for you.
I’ve fallen in love with a little boy, who’s photo I have seen on Reese’s rainbow.
I had stopped looking on RR, my heart was broken for all these beautiful little people left alone in Orphanages. I haven’t been able to get Zhenya off my mind, so I pray for him.
Another little girl that has taken my heart is Olga she is directly above Zhenya http://www.reecesrainbow.com/newsite/ee2.html
Zhenya reminds me so much of Aden, specially in the photo shown. Many of the other photo’s of him I can see Aden as well.
Zhenya is in a poorer orphanage, where many of the children are undernourished, brakes my heart to know he is missing out on nutrients, as well as the love, a family would bring him.
In his Orphanage as soon as the children turn 4 they are moved to an institution, where their survival rate is poor. This put Zhenya at a greater risk, which make me feel so desperate for him.
Craig has really taken Zhenya in his heart and wants to jump on a flight and steal him out, of that orphanage. If only we could, if only he was right that Adens passport might free this sweet boy. It isn’t’ enough and living here in Australia we couldn’t adopt him or sweet Olga no matter how much we wanted to.
Makes me appreciate why Americans love their country and freedom.
As if my heart didn’t’ bleed enough for Zhenya already, then this morning I realised even more how much I need to pray and ask others to pray for this darling boy.
While Aden was eating toast for breakfast, Matthew (5yrs) took some toast from Aden’s’ plate (we had words….) as I went to make Aden another peace of toast. I thought of Zhenya, he doesn’t have a mummy or daddy to make him more toast. He will go hungry and he will die soon after he is 4.
Please pray with me for him.
if you can afford to please donate money to his grant fund, even if just $5, $10 what ever you can afford. Right now he doesn’t have any funds at all. I’m going to try and work out how to donate money tonight. And once I have permission I’ll post a photo of him on the blog. So every time anyone pops in here and sees his sweet face they will be reminded to pray.
Please keep all these little children in your prayers, thoughts.
This photo broke our hearts to see his cot on the floor. We were concerned about the clod coming through Aden’s cot, so we put a sheepskin under his sheet. We live in North QLD, with 40 degree heat. Zhenya sweet baby boy, we are praying for a family for you.
I’ve fallen in love with a little boy, who’s photo I have seen on Reese’s rainbow.
I had stopped looking on RR, my heart was broken for all these beautiful little people left alone in Orphanages. I haven’t been able to get Zhenya off my mind, so I pray for him.
Another little girl that has taken my heart is Olga she is directly above Zhenya http://www.reecesrainbow.com/newsite/ee2.html
Zhenya reminds me so much of Aden, specially in the photo shown. Many of the other photo’s of him I can see Aden as well.
Zhenya is in a poorer orphanage, where many of the children are undernourished, brakes my heart to know he is missing out on nutrients, as well as the love, a family would bring him.
In his Orphanage as soon as the children turn 4 they are moved to an institution, where their survival rate is poor. This put Zhenya at a greater risk, which make me feel so desperate for him.
Craig has really taken Zhenya in his heart and wants to jump on a flight and steal him out, of that orphanage. If only we could, if only he was right that Adens passport might free this sweet boy. It isn’t’ enough and living here in Australia we couldn’t adopt him or sweet Olga no matter how much we wanted to.
Makes me appreciate why Americans love their country and freedom.
As if my heart didn’t’ bleed enough for Zhenya already, then this morning I realised even more how much I need to pray and ask others to pray for this darling boy.
While Aden was eating toast for breakfast, Matthew (5yrs) took some toast from Aden’s’ plate (we had words….) as I went to make Aden another peace of toast. I thought of Zhenya, he doesn’t have a mummy or daddy to make him more toast. He will go hungry and he will die soon after he is 4.
Please pray with me for him.
if you can afford to please donate money to his grant fund, even if just $5, $10 what ever you can afford. Right now he doesn’t have any funds at all. I’m going to try and work out how to donate money tonight. And once I have permission I’ll post a photo of him on the blog. So every time anyone pops in here and sees his sweet face they will be reminded to pray.
Please keep all these little children in your prayers, thoughts.
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